2020, Number 3
<< Back Next >>
Rev Elec Psic Izt 2020; 23 (3)
Psychosocial profile of informal primary caregiver of the oncohematological patient. A pilot study
Escamilla GML, Carrillo VL, Ordaz CMI
Language: Spanish
References: 23
Page: 895-911
PDF size: 346.80 Kb.
ABSTRACT
Informal Primary Caregivers of oncohematological patients face different stressors and challenges than other caregiver populations due to particularities of the malignant blood neoplasm that affect their patients, which can lead to stress, depression, anxiety, caregiver burden and, in consequence, decrease in quality of life. This study was aimed to identify the demographic and psychological variables of informal primary caregivers of patients with a oncohematological illness, which could have an important impact on their role and quality of life and therefore they require attention by health team. It is about transversal, descriptive- comparative pilot research. Demographic variables, depression, stress, caregiver burden, coping strategies and quality of life were evaluated in 8 oncohematological patients’ informal primary caregivers. A descriptive and inferential comparative analysis was performed. They were moderate levels of depression, stress and overload, low levels of coping strategies and good quality of life were obtained. Only a statistically significant difference (z=-2.33; p=.019) was found in overload (expectations of self-efficacy), with respect to the type of disease. In conclusion, it is important to evaluate oncohematological caregivers to offer interventions that help them to better face the situations that arise.
REFERENCES
Battie, S. y Lebel, S. (2011). The experience of caregivers of hematological cancer patients undergoing a hematopoietic stem cell transplant. A comprehensive literature review. Psycho-oncology, 20, 1137-1150. doi: 10.1002/pon.1962
Bevans, M. y Sternberg, E.M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. JAMA, 307 (4), 398-403. doi: 10.1001/jama.2012.29
Bojorquez, I. y Salgado, N. (2009). Características psicométricas de la Escala Center for Epidemiological Studies-Depression (CES-D), versión de 20 y 10 reactivos, en mujeres de zona rural mexicana. Salud Mental, 32, 299-307. Recuperado de: http://www.scielo.org.mx/pdf/sm/v32n4/v32n4a5.pdf
Camacho, L., Arvizu, G. y Jiménez, A. (2010). Sobrecarga del cuidador primario de personas con deterioro cognitivo y su relación con el tiempo de cuidado. Enfermería Universitaria, 7 (4), 35-41. Recuperado de http://www.scielo.org.mx/pdf/eu/v7n4/v7n4a6.pdfhoras
Carey, M., Sanson-Fisher, R., Paul, C., Bradstock, K., Williamson, A. y Campbell, H. S. (2017). Psychological morbidity among Australian rural and urban support persons of haematological cancer survivors: Results of a national study. Psycho-Oncology, 26 (11), 1952–1958. doi:10.1002/pon.4411
Chivukula, U., Kota, S. y Nandinee, D. (2018). Burden expirence of caregivers of acute lymphoblastic leukemia. Impact of coping and spirituality. Indian Journal of Palliative Care, 24 (2), 189-195. doi: 10.4103/IJPC.IJPC_209_17
Cohen, S., Kamarck, T. y Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior, 24 (4), 385-396. doi: 10.2307/2136404
Deniz, H. y Inci, F. (2015). The burden of care and quality of life of caregivers of leukemia and lymphoma patients following periphereic stem cell transplantation. Journal of Psychosocial Oncology, 33 (3), 250-262. doi: 10.1080/07347332.2015.1019660
Effendy, C., Vemooji- Dassen, M., Setiyarini, S., Sinta, M., Tejawinata, S., Vissers, K. y Engels, Y. (2015). Family caregivers’ involvement in caring for a hospitalized patient with cancer and their quality of life in a country with strong family bonds. Psycho-Oncology, 24, 585-591. doi: 10.1002/pon.3701
El-Jawahri, A.R., Treager, L., Kuzmuk, K., Eusebio, J., Vandunsen, H… Temel, J. (2015). Quality of life and mood of patients and family caregivers during hospitalization for hematopoietic stem cell transplantation. Cancer, 951-959. doi: 10.1002/cncr.29149
Gardner, M. H., Mrug, S, Schwebel, D. C., Phipps, S., Whelan, K. y Madan-Swain,
A. (2017). Benefit finding and quality of life in caregivers of childhood cancer survivors: the moderating roles of demographic and psychosocial factors. Cancer Nursing, 40 (5), E28–E37. doi:10.1097/NCC.0000000000000419
González, M. T. y Landero, R. (2007). Cuestionario del Afrontamiento del Estrés (CAE): Validación en una muestra mexicana. Revista de Psicopatología y Psicología Clínica, 12 (2), 189-198. Recuperado de: http://aepcp.net/arc/04_2007(3)_Gonzalez_y_Landero.pdf
Grover, S., Rina, K., Malhotra, P. y Khadwal, A. (2019). Caregiver burden in the patients of acute myeloblastic leukemia. Indian Journal of Hematology and Blood Transfusion, 35 (3), 437-445. Recuperado de: https://doi.org/10.1007/s12288-018-1048-4
Hernández, R., Fernández, C. y Baptista, P. (2011). Metodología de la Investigación (5ta ed.). México: McGraw Hill.
Instituto Nacional de Estadística y Geografía (2010). Panorama de las religiones en México 2010. México: INE. Recuperado de: http://internet.contenidos.inegi.org.mx/contenidos/productos/prod_serv/contenidos/espanol/bvinegi/productos/censos/poblacion/2010/panora_religion/religiones_2010.pdf
International Agency for Research on Cancer. IARC. (2019). The global cancer observatory. Recuperado de: http://gco.iarc.fr/today/home
Jaime, J.C. y Gómez, D. (2012). Hematología. La sangre y sus enfermedades (3a ed.). México: McGraw Hill.
Litzelman, K., Kent, E. y Rowland, J. H. (2018). Interrelationships amid health behaviors and coping strategies among informal caregivers of cancer survivors. Health Education & Behavior, 45 (1), 90–100. doi:10.1177/1090198117705164
Mystakidou, K., Tsilika, E., Parpa, E., Galanos, A. y Vlahos, L. (2007). Caregivers of advanced cancer patients. Feelings of hopelessness and depression. Cancer Nursing, 30 (5), 412-418. doi: 10.1097/01.NCC.0000290807.84076.73
Melguizo-Herrera, E., Ayala-Medrano, S., Grau-Coneo, M., Merchán-Duitama, A., Montes-Hernández, T... Reyes-Villadiego, T. (2014). Calidad de vida de adultos mayores en centros de protección social en Cartagena (Colombia). Aquichan, 14 (3), 537-548. doi: 10.5294/aqui.2014.14.4.8
Montero, X., Jurado, S., Valencia, A., Méndez, J. y Mora, I. (2014). Escala de carga del cuidador de Zarit: Evidencia de validez en México. Psicooncología, 11 (1), 71-85. doi: 10.5209/rev_PSIC.2014.v11.n1.44918
National Alliance for Caregiving. (2016). Cancer caregiving in the U.S. An intense, episodic, and challenging care experience. Recuperado de: https://www.caregiving.org/wp-content/uploads/2016/06/CancerCaregivingReport_FINAL_June-17-2016.pdf