Colmenares-Bonilla D, Ortiz-Agapito F

Language: Spanish
References: 15
Page: 117-121
PDF size: 280.74 Kb.

ABSTRACT

Background: Pediatric orthopedic disorders are common in children and the dependence of these patients to the family increases, mainly because some do not achieve personal or social Independence, which generates an impact on family dynamics and functionality. The family system ideally should then be rearranged to overcome the crisis that represents this condition. One of the first adaptations is assign the primary caregiver who assumes responsibility for the sick at all regarding their basic care and attention. Objective: Determine the overload on the primary caregiver for the most common pediatric orthopedic conditions in the Hospital Regional de Alta Especialidad del Bajío. Method: A descriptive, prospective and cross-sectional study in 120 patients diagnosed with cerebral palsy, myelomeningocele, clubfoot and developmental dysplasia of the hip, which had a primary caregiver. They conducted Zarit questionnaire to evaluate the overload to which they are subjected. Results: The results obtained in terms of the characteristics of the primary caregiver demonstrate a significant percentage of nuclear families, in which both parents meet the needs of the patient. But nevertheless, in all cases the mother was the one defined as the primary caregiver. Primary caregivers of patients with cerebral palsy and myelomeningocele are those with higher overload. Conclusions: The primary caregiver is subject to considerable overload in pediatric orthopedic conditions. Added to the own needs, they adopt sick family patient ones. There is importance to assess the emotional and family load the pediatric orthopedic diseases give so we can determine the need of emotional, physical and emotional helps, since the caregivers are the «second victims» of the disease.

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