medigraphic.com
Instituto Nacional de Neurología y Neurocirugía

2010, Number 3

<< Back Next >>

Arch Neurocien 2010; 15 (3)

Clinical, epidemiological and sociocultural study about epilepsy. Critical approach

Figueroa-Duarte AS

Language: Spanish
References: 34
Page: 139-151
PDF size: 175.87 Kb.


ABSTRACT

Epilepsy is one of the most frequent and furthermore, chronic neurological conditions that affect fifty million persons in the world, most of them living in developing countries. Following a methodological proposal designated socio-cultural epidemiology a study was conducted in the city of Hermosillo, Sonora, Mexico from 2005 to 2008. Objectives: to analyze the condition at the location where it occurs and is cared for in order to learn how those who suffer it experience and face it: the children and adolescents, their mothers and other relatives, as well as the health-care staff accountable for their care. Materials and Methods: The study was conducted with a combination of quantitative and qualitative methodologies by means of two strategies: first, through an analysis of medical records from a local children’s mental health unit in order to gain knowledge of the epidemiology and clinical characteristics of the disease; second, through interviews with 20 parents regarding the sociocultural aspects thereof. Afterwards, six families residing in the city’s peripheral area were interviewed, in order to become acquainted with the main problems found in the care of their children’s epilepsy, as well as the physician specialist who evaluated the cases. Results: The findings reveal the problems experienced by those suffering this disease, mainly by the non-insured population; in addition, the limited capacity of the health systems to face and to help this population was exposed. Also, the precarious conditions under which these families live, and the work overload and lacks experienced by the physicians who help this population were detected. The impact on families living in the poorest areas due to the disease’s high treatment cost was reflected. Conclusions: This study highlights the precarious conditions under which these families live and how it exerts an influence on the control of the disease. Also, the commitment of the institutions (public health, medical, educational) is underscored within a perspective focused on prevention (primary health care) due to the large number of epilepsy cases with preventable etiological factors.


REFERENCES

  1. González S, Quintana J, Fabelo R. Epilepsia y sociedad: una mirada hacia el siglo XXI. Revista Electrónica de Psiquiatría 1999; 3. Disponible en: http://wwwfile://C/DOCUMENT-1UH (6 de agosto de 2007).

  2. García F. Epidemiología de la epilepsia en Latinoamérica. Foro de Epilepsia 1993. Disponible en: http:www//neurologiarediris. es/congreso-1/conferencia/epilepsia-1 (18 de agosto de 2007).

  3. García Pedroza F. La epilepsia como problema de salud pública. En: Feria Velasco A, Martínez de Muñoz D, Rubio Donnadieu F. Epilepsia aspectos neurobiológicos, médicos y sociales. México: Ediciones del Instituto Nacional de Neurología y Neurocirugía, 1997.

  4. Anderman LF. Epilepsy in our world: an ethnographic view. Epilepsy and Behavior 2000; 1(3):169-75.

  5. Hersch Martínez P, Haro Encinas JA. ¿Epidemiología sociocultural o antropología médica? algunos ejes para un debate transdisciplinar. Etnografías y técnicas cualitativas en investigación sociosanitaria. Un debate pendiente. Ponencia presentada en el VII Coloquio REDAM/Universitat Rovira I Virgil, Tarragona, 2007.

  6. Kraemer G. Epilepsy A to Z. Dictionary of medical terms. Stuttgart: Gerge Thieme Verlag 2005.

  7. Brailowsky S. Epilepsia. Enfermedad sagrada del cerebro. México: Fondo de Cultura Económica. Colección La Ciencia para Todos 170, 1999.

  8. Commission on Classification of Epilepsy and Epileptic Syndromes.International League Against Epilepsy. Epilepsia 1989;30(2):389-99.

  9. Commission on Classification and Terminology of the International League Against Epilepsy. Proposed for revised clinical and electroencephalographic classification of epileptic seizures. Epilepsia 1981; 22(4):489-501.

  10. Commission on Classification and Terminology of the International League Against Epilepsy. Proposal for Revised Classification of Epilepsies and epileptic Syndromes. Epilepsia 1989;30(4):389-99.

  11. Engel J. ILAE Commission Report. A Proposed Diagnostic Scheme for People with Epileptic Seizures and with Epilepsy: Report of the ILAE Task Force on Classification and Terminology. Epilepsia 2001; 42 (6):796-803.

  12. Instituto Nacional de Estadística, Geografía e Informática (INEGI). 2000. Información Digital. Hermosillo. www.inegi.gob.mx (24 julio de 2007).

  13. Consejo Nacional de Población (CONAPO). Índices de marginación. México: Consejo Nacional de Población, 2006.

  14. Sistema para la Consulta de Información Censal (SCIENCE). Sonora. XII Censo general de Población y Vivienda 2000. México: Instituto Nacional de Estadística, Geografía e Informática (INEGI). www.inegi.gob.mx.

  15. Finkler K. Gender, Domestic Violence and Sickness in Mexico. Social Science and Medicine 1997; 45 (8):1147-60.

  16. Figueroa-Duarte, A.S. Epilepsia en niños y adolescentes. Un estudio desde la perspectiva de la epidemiología sociocultural. Tesis para optar por el grado de Doctora en Ciencias Sociales. Hermosillo: El Colegio de Sonora 2008.

  17. Figueroa-Duarte, A.S y Campbell-Araujo, O.A. (eds.) Contactando. Boletín electrónico de apoyo a padres. Taller para padres de enfermos con epilepsia. Disponible en: http://www.boletincon tactando.com/talleres.htm .

  18. Goffman I. Estigma. La identidad deteriorada. Buenos Aires: Amorrortu editores, 1989.

  19. Winfield Gibson, Ann. Eugenics and education: implications of ideology, memory, and history for education in the United States. A dissertation submitted in partial fulfillment of the requirements for the degree of doctor of philosophy. North Carolina State University. http//www.ñibrarything.es.work/904692. (7 abril de 2004).

  20. Arnau-Ripollés M S. Violencia de género y mujer con discapacidad. Actividades Conmemoración del Día Internacional contra la Violencia de Género (25 de noviembre). Consejo de la Mujer del Excelentísimo Ayuntamiento de Sagunto (Valencia). 2003. Disponible en: http://insomnia.uji.es/doc/spanish/investigación/ciclo/mujeres y discapaciadad.pps.

  21. Radio Internacional Feminista-FIRE. Facilitar el acceso a las nuevas tecnologías. Día Mundial de las Personas con Discapacidad. Disponible en: http://www.radiofeminista.net/06/ notas/discapacidad.

  22. Pérez Jáuregui MI. El síndrome de burnout (quemarse en el trabajo) en los profesionales de la salud. Psicología y Psicopedagogía 2001; 2(5). Disponible en: http:///www.salvador. edu.ar/ual-9pub02-5-.

  23. Figueroa-Duarte, A S, Campbell-Araujo O A. Aspectos psicosociales de la epilepsia en niños y adolescentes. Arch Neurocien 2004; 3 (9): 135-42.

  24. Cabrera M. Observaciones sobre la pobreza desde un enfoque de derechos humanos. En: Social Watch. El derecho a no ser pobre. La pobreza como violación de los derechos humanos. Coordinación del Equipo de Investigación de Social Watch. Montevideo: Sociedad Bervejillo, Serie de Cuadernos Ocasionales, 2006.

  25. García DE. Mujeres pobres jefas del hogar en México. 2007. Disponible en: www.globaljusticecenter.org/ponencias2005/ garcia_vences_esp.htm (06 de septiembre de 2007).

  26. Commission on social Determinants of Health. Action on the Social Determinants of Health: Learning from Previous Experiences. Geneva: World Health Organization. 2005. Disponible en: http://www.who.int/spcial_determinants/en/ (07 de septiembre de 2007).

  27. Dennis R. Social determinants of health: present status, unanswered questions, and future directions. Interna J Health Servi 2006; 36 (4):651-7.

  28. Dennis R. Barriers to addressing the societal determinants of health: public health units and poverty in Ontario, Canada. Health Promotion International 2003; 18(4):397-405.

  29. Sewel, H. A theory of structure: Duality, agency, and transformation. Am J Socio 1992;98(1):1-29.




2020     |     www.medigraphic.com