medigraphic.com
ISSN 2307-2113 (Electronic)
Revista Cubana de Información en Ciencias de la Salud (ACIMED)

2019, Number 4

<< Back Next >>

Revista Cubana de Información en Ciencias de la Salud (ACIMED) 2019; 30 (4)

Identity and interactive health communication: the discourse of people with low vision on the social networks

Caran G, Araújo R, Travieso-Rodríguez C

Language: Spanish
References: 29
Page: 1-19
PDF size: 535.52 Kb.


ABSTRACT

The social movement Bengala Verde (Green Signal Flare) emerged in Brazil with the purpose of fostering the social involvement of people with low vision. The use and appropriation of the digital environment by this movement shows that dissemination of health information is a fundamental discourse resource conditioned by (self-) conceptions about characteristic modes of thinking, feeling and reacting of people with low vision. The purpose of the study was to explore the discourse of these people with respect to their own social identity on social media and networks. Based on a interactive health communication perspective, an analysis was performed of YouTube videos and publications on Facebook and Instagram by the Stargardt Virtual Group, a virtual community linked to the Bengala Verde movement and made up of people with low vision suffering from Stargardt's disease. Starting from a selection of fragments of these discourse excerpts and their coding, 42 distinguishing traits were identified, grouped into a conceptual model of eight synthetic categories. These traits are constructed interactively through a process of development patterned at moments of agreement, disagreement and sense of humor. Discourse resources contribute to consolidate a unique identity, different from that of blind people, but similar as to the legal framework of people with visual disabilities.


REFERENCES

  1. Recuero R. Redes sociais na internet. Porto Alegre: Sulina; 2009.

  2. Recuero R. A conversação em rede: comunicação mediada pelo computador e redes sociaisna internet. Porto Alegre: Sulina; 2012.

  3. Bauman Z, Mauro E. Babel: entre a incerteza e a esperança. Rio de Janeiro: Zahar; 2016.

  4. Castells M. Redes de indignação e esperança: movimentos sociais na era da internet. Rio deJaneiro: Zahar; 2017.

  5. Araujo RF, Silva BM, Mota FL. Informação em saúde sobre a dengue no youtube: um estudocibermétrico. In: Araujo RF. (ed.) Estudos métricos da informação na web: atores, ações e dispositivos informacionais. Maceio: Edufal; 2015. p. 173-92.

  6. Eng TR, Gustafson DH. Wired for health and well-being: the emergence of interactive healthcommunication. Washington, D.C.: Office of Disease Prevention and Health Promotion; 1999.

  7. Eng TR, Gustafson DH, Henderson JH, et al. Introduction to evaluation of interactive healthcommunication applications. Am J Prev Med. 1999;16(1):10-5.

  8. Murray E, Burns J, See T, Lai R, Nazareth I. Interactive health communication applicationsfor people with chronic disease. Cochrane Database Syst Rev. 2005;4:CD004274.

  9. Rada R. A case study of a retracted systematic review on interactive health communicationapplications: impact on media, scientists, and patients. J Med Internet Res. 2005;7(2):e18.

  10. Welch V, Petkovic J, Pardo Pardo J, et al. Interactive social media interventions to promotehealth equity: an overview of reviews. Health Promot Chronic Dis Prev Can. 2016 [accessed: 12/07/2019];36(4):63-75. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4964231/

  11. Vaca Vaca M, Rodríguez Cárdenas D, Gutiérrez Cárdenas P, Ruiz O. Representacionessociales de la inclusión escolar de estudiantes con limitación visual: creencias y prácticas. Rev Col Reh. 2012;11(1):56-67.

  12. Garcia C. Sociologia da acessibilidade. Porto Alegre, Brasil: IESDE; 2012.

  13. Organização Mundial da Saúde. CIF: classificação internacional da funcionalidade,incapacidade e saúde. São Paulo: EDUSP; 2003.

  14. Caran G. Acessibilidade e suas fronteiras com a deficiência, usabilidade e comportamentoinformacional. In: VI Encontro Ibérico EDICIC 2013. Actas do VI Encontro da Associação de Educação e Pesquisa em Ciência da Informação da América Latina e Caribe, EDICIC; 2013 [accessed: 12/07/2019]; Porto, Portugal: FLUP; 2013. Available from: http://ocs.letras.up.pt/index.php/EDICIC/edicic2013/paper/view/403

  15. Dhanda A. Construindo um novo léxico dos direitos humanos: convenção sobre os Direitosdas Pessoas com Deficiências. Sur Rev Int Direitos Human. 2008;5(8):42-59.

  16. Lago Júnior A, Barbosa AS. Primeiras análises sobre o sistema de (in) capacidades,interdição e curatela pós Estatuto da Pessoa com Deficiência e Código de Processo Civil de 2015. Rev Direito Civ Contemp. 2016;8:49-89.

  17. Jeanneret Y. Analisar as “redes sociais” como dispositivos infocomunicacionais: umaproblemática. In: Marteleto RM, Tomaél MI, (eds.) Informação e Redes Sociais: interface de teorias, métodos e objetos. Londrina: Eduel; 2015. p.11-31.

  18. Latour B. Reagregando o social: uma introdução à Teoria do Ator-Rede. Salvador: Edufba;2012.

  19. Ahmed S, Haines‐Saah RJ, Afzal AR, Tam‐Tham H, Al Mamun M, Hemmelgarn BR, et al.User‐driven conversations about dialysis through Facebook: a qualitative thematic analysis. Nephrology. 2017;22(4):301-7.

  20. Scott DM. The new rules of marketing and PR: How to use social media, online video, mobileapplications, blogs, news releases, and viral marketing to reach buyers. Hoboken, NJ: Wiley and Sons; 2013.

  21. Marteleto R. Redes sociais, mediação e apropriação de informações: situando campos,objetos e conceitos na pesquisa em ciência da informação. Tend Pesqui Bras Cienc Inf. 2010;3(1):27-46.

  22. Morel G, Villalobos L. Identidad y baja visión. Alteridad Rev Edu. 2011;6(2):109-17.

  23. Caran G, Biolchini J. Eixos conceituais do acesso à informação pelo deficiente visual:suportes cognitivo, social e tecnológico. Tend Pesqui Bras Cienc Inf. 2016 [accessed: 12/07/2019];9(2). Available from: http://200.20.0.78/repositorios/handle/123456789/3234?show=full

  24. Gajaria A, Yeung E, Goodale T, et al. Beliefs about attention-deficit/hyperactivity disorderand response to stereotypes: youth postings in Facebook groups. J Adolesc Health. 2011;49(1):15-20.

  25. Silveira PCM, Costa AES, Lima CC. Gagueira na web: qualidade da informação. RevCEFAC. 2012;14(3):430-7.

  26. Martiniello N, Budd J, Nguyen MN, et al. Accessibility of social media for students who areblind or have low vision. Kelowna: Canadian Blind Monitor; c2011 [accessed: 18/07/2019].Available from: http://www.blindcanadians.ca/publications/cbm/32/

  27. Brady EL, Zhong Y, Morris MR, Bigham JP. Investigating the appropriateness of socialnetwork question asking as a resource for blind users. San Antonio, Texas, EE.UU.: CSCW '13: Proceedings of the Conference on Computer supported cooperative work; 2013. p.1225-36.

  28. Wu S, Adamic L. Visually impaired users on an online social network. New York:Proceedings of the SIGCHI Conference on Human Factors in Computing Systems. pp. 3133-42.

  29. Caran G, Biolchini J. Fatores no acesso à informação para a promoção da saúde do deficientevisual: um mapeamento sistemático da literatura. João Pessoa, Brasil: XVI Encontro Nacional de Pesquisa em Ciência da Informação; 2015 [accessed: 18/07/2019]. Available from: http://www.ufpb.br/evento/index.php/enancib2015/enancib2015/paper/viewFile/2998/1268




2020     |     www.medigraphic.com