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2013, Number 6

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Rev Med Inst Mex Seguro Soc 2013; 51 (6)

Hemophilia camps

Juárez-Sierra J, Torres-Arreola LP, Marín-Palomares T, Dueñas-González MT, Monteros-Rincón MP, Osorio-Guzmán M

Language: Spanish
References: 23
Page: 668-673
PDF size: 56.46 Kb.


ABSTRACT

We reported the experience of hemophilia camps, that was accomplished with patients from hospitals of the Instituto Mexicano del Seguro Social. The aim was to prepare the families and patients about the disease treatment, in order to promote the self suffi ciency and to know the impact of the program on the course of the disease. Surveys were applied about treatment items and personal opinions were collected. The results of the national hemophilia camp were: group of 56 patients, average 14 years, 2 % women, 51 % severe hemophilia and 43 % had hemophilic brothers. Benefi ts: patients increased their knowledge about earlier bleedings identifi cation and self infusion method, they became aware on their responsibility in self care, timely treatment and duties at home. Hemophilia camps with patients are an option for attitude change before disease complications. Social network creation and the increase in self suffi ciency are other benefits.


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