2009, Number 2
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Rev Inst Nal Enf Resp Mex 2009; 22 (2)
Impacto familiar del asma pediátrica. Versión mexicana del cuestionario IFABI-R
Bazán-Riverón GE, Torres-Velázquez LE, Prat-Santaolaria R, andoval-Navarrete J, Forns-Serrallonga D
Language: Spanish
References: 41
Page: 73-83
PDF size: 97.07 Kb.
ABSTRACT
Validation of the Impacto Familiar del Asma Bronquial Infantil-Revised questionnaire (IFABI-R) in Mexico included two phases: The preliminary phase, in which an experts team and 30 caregivers worked to obtain the linguistically adapted version, and the central phase, in which the IFABI-R psychometric properties were evaluated by interviewing 300 caregivers in two separate occasions (time interval of 15 days). The medical team collected information about severity of patients’ disease. Caregivers informed about children’s age and gender, morbidity indicators, social class, parents’ perception of symptoms and impact of asthma in the family. The psychometric study showed a high reliability (test-retest: r = 0.94, p ‹ 0.01, n = 292; internal consistency: α = 0.93). Regarding the extraction of the main components, the four-dimensional solution was the most convenient (explained variance = 64.47%). The IFABI-R concurrent validity was satisfactory since it showed positive relationships with severity of the disease, morbidity indicators and parent’s perception of symptoms (p ‹ 0.01). In conclusion, the IFABI-R has good psychometric properties in Mexican population.
REFERENCES
Global Initiative for Asthma. Global strategy for asthma management and prevention. Revised 2008. Bethesda, Md: NIH, NHLBI. Access date: June of 2009. Available from: http://www.ginasthma.com/Guidelineitem. asp??l1=2&l2=1&intId=60
Asher M, Keil U, Anderson H, et ál. International study of asthma and allergies in childhood (ISAAC): rationale and methods. Eur Respir J 1995;8:483-491.
Del-Rio-Navarro B, Del Rio-Chivardi JM, Berber A, Sierna-Monge JJ, Rosas-Vargas MA, Baeza- Bacab M. Asthma prevalence in children living in north Mexico City and a comparison with other Latin American cities and world regions. Allergy Asthma Proc 2006; 27:334-340.
Gallardo MG, Arias CA, González DSN, Galindo RG. Costos derivados de la atención médica del asma en un grupo de niños del Noreste de México. Rev Alerg Mex 2007;54:82-85.
Salgado AGG, Ceballos MZI, Sandoval JL, Hernández CV. Agudizaciones del asma y sus costos de atención en el servicio de urgencias. Rev Alerg Mex 2006;53: 64-68.
Klinnert MD, Kaugars AS, Strand M, Silveira L. Family psychological factors in relation to children’s asthma status and behavioral adjustment at age 4. Fam Process 2008;47:41-61.
Sawyer MG, Spurrier N, Kennedy D, Martin J. The relationship between the quality of life of children with asthma and family functioning. J Asthma 2001; 38:279-284.
Juniper E. How important is quality of life in pediatric asthma? Pediatr Pulmonol Suppl 1997;15:17-21.
Callery P, Milnes L, Verduyn C, Couriel J. Qualitative study of young people’s and parents’ beliefs about childhood asthma. Br J Gen Pract 2003;53:185-190.
Kieckhefer GM, Ratcliffe M. What parents of children with asthma tell us. J Pediatr Health Care 2000;14: 122-126.
Rydström I, Dalheim-Englund AC, Segesten K, Rasmussen B. Relations governed by uncertainty: part of life of families of a child with asthma. J Pediatr Nurs 2004;19:85-94.
Fiese BH. Breathing life into family processes: introduction to the special issue on families and asthma. Fam Process 2008;47:1-5.
Badia LIX, Benavides RA, Rajmil RL. Instrumentos de evaluación de la calidad de vida relacionada con la salud en niños y adolescentes con asma. An Pediatr (Barc) 2001;54:213-221.
Velarde-Jurado E, Ávila-Figueroa C. Evaluación de la calidad de vida. Salud Pública Mex 2002;44:349-361.
Alvarado M. Psicopatología de la infancia, adolescencia y adultos (tesis). España: Universidad Autónoma de Barcelona; 2002.
Forns D, Prat R, Russiñol S, Alvarado M. Impacto familiar del asma bronquial infantil: primeros resultados del cuestionario IFABI. Congreso Nacional de Psicología. Málaga, España; 2004.
Forns D, Prat R, Marco T, Alvarado M. Grado de afectación de los indicadores de morbilidad en niños asmáticos. En: Marinho ML, de Silva RM, Souza SR, Isquierdo GR, Kanamota JS, Souza FB, Marinho PS, editores. Avanços recentes em psicologia clínica e da saúde. Resumo do II Congresso Iberoamericano de Psicologia Clínica e da Salúde. Vol. 2. Londrina/ Granada: UEL/APICSA; 2001.p.314-315.
Gustafsson D, Olofsson N, Andersson F, Lindberg B, Schollin J. Effect of asthma in childhood on psycho-social problems in the family. J Psychosom Res 2002;53:1071-1075.
Klinnert M, Price MR, Liu AH, Robinson JL. Morbidity patterns among low-income wheezing infants. Pediatrics 2003;112:49-57.
Bazán RGE, Forns SD, Remei PS, et ál. Validación del cuestionario "Percepción parental de síntomas infantiles de asma en México". Rev Inst Nal Enf Resp Mex 2008; 21:169-180.
Tauler E, Vilagut G, Grau G, et ál. The spanish version of the paediatric asthma quality of life questionnaire (PAQLQ): metric characteristics and equivalence with the original version. Qual Life Res 2001;10:81-91.
Badia X, García-Hernández G, Cobos N, López-David C, Nocea G, Roset M. Validación de la versión española del Pediatric Quality of Life Questionnaire en la valoración de la calidad de vida del niño asmático. Med Clin (Barc) 2001;116:565-572.
Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in children with asthma. Qual Life Res 1996;5:35-46.
Perpiñá T. La medición de la calidad de vida relacionada con la salud. En los ensayos clínicos sobre asma. Fecha de consulta: mayo de 2009. Accesible en: http://www. azprensa.com/SCORES/asma/cap_9.pdf.
Rajmil L, Estrada MD, Herdman M, Serra-Sutton V, Alonso J. Calidad de vida relacionada con la salud (CVRS) en la infancia y la adolescencia: Revisión de la bibliografía y de los instrumentos adaptados en España. Gac Sanit 2001;15:34-43.
Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in the parents of children with asthma. Qual Life Res 1996; 5:27-34.
Forns D, Tauler E, Prat R, Bosque M. Nuevo instrumento para la evaluación del impacto del asma infantil en la calidad de vida de los padres. Arch Bronconeumol. En prensa 2009.
Sierna-Monge JJL, Del Río-Navarro BE, Álvarez-Amador M, Blandon-Vijil V, Gómez Chico-Velasco R. Calidad de vida del cuidador del niño asmático. Gac Méd Méx 2004;140:139-146.
Reichenberg K, Broberg AG. The paediatric asthma Caregiver’s Quality of Life Questionnaire in Swedish parents. Acta Paediatr 2001;90:45-50.
Dalheim-Englund AC, Rydström I, Rasmussen BH, Möller C, Sandman PO. Having a child with asthma - quality of life for Swedish parents. J Clin Nurs 2004; 13:386-395.
Rutishauser C, Sawyer SM, Bowes G. Quality-of-life assessment in children and adolescents with asthma. Eur Respir J 1998;12:486-494.
Vidal GA, Duffau TG, Ubilla PC. Calidad de vida en el niño asmático y su cuidador. Rev Chil Enf Respir 2007; 23:160-166.
Barrueto CL, Yánez FM, Gálvez VV, Mallol VJ. Calidad de vida en madres de lactantes portadores de sibilancias recurrentes. Rev Chil Enf Respir 2004;20:71-75.
Beltrán GFJ, Torres FIA, Vázquez NF, et ál. Calidad de vida en cuidadores de enfermos asmáticos: un estudio comparativo. Psicología y Salud 2008;18:181-187.
Hollingshead A. Four factor index of social status: Unpublished manuscript. Yale University, Department of Sociology, 1975.
Busquets MR, Escribano MA, Fernández BM, et ál. Consenso sobre tratamiento del asma en pediatría. An Pediatr (Barc) 2006;64:365-378.
Forns D, Prat R, Tauler E, Bosque M. Percepción de síntomas y limitación de actividades cotidianas en niños y adolescentes asmáticos. Allergol immunopathol 2007;35(supl 1):51.
Kleinbaum DG, Kupper LL, Muller KE, Nizam A. Applied regression analysis and other multivariable methods. USA: Wadsworth Publishing; 1998.p. 595-642.
Calam R, Gregg L, Simpson B, Morris J, Woodcock A, Custovic A. Childhood asthma, behavior problems, and family functioning. J Allergy Clin Immunol 2003;112: 499-504.
McQuaid EL, Weiss-Laxer N, Kopel SJ, et ál. Pediatric asthma and problems in attention, concentration, and impulsivity: disruption of the family management system. Fam Syst Health 2008;26:16-29.
Rubenstein HS, King SH, London EL. Adolescent and postadolescent asthmatics´ perception of their mother as overcontrolling in childhood. Adolescence 1979; 14:1-18.