2021, Number 3
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Rev Elec Psic Izt 2021; 24 (3)
My dads do not live it the same as me: brothers of children with autism
Tlalpachícatl CN, Gómez MMEL
Language: Spanish
References: 34
Page: 1251-1276
PDF size: 432.67 Kb.
ABSTRACT
Investigations that include the siblings of children with autism,
it has been found that there are positive aspects such as greater
empathy, assertiveness, willingness to support the sibling,
although negative aspects have also been found such as early
responsibility, increased stress, depression; it depends on
several factors such as individual aspects, age, family climate,
type and degree of disability of the sibling. The experiences of
parents of children with autism have also been investigated and
they find positive aspects such as increased sensitivity,
organization, discipline and negative aspects such as stress
and depression. However, there are few papers that describe
the experiences of siblings and parents to identify how they
coincide and how they differ. The purpuse of this article was to
analyze the life experiences of siblings of children with autism
spectrum disorder and compare them with the experiences of
their parents. Interviews were conducted with siblings and
parents, then a qualitative analysis was made through the
Atlas.ti software of coincidences and differences between the
experiences of 23 siblings of children with autism spectrum
disorder who are at risk of presenting internalized, outsourced
and mixed problems ( 8 to 12 years), with the experiences
reported by their parents. It was found that there are differences
between siblings and parents in
information about autism,
family climate, relationship between siblings and
present and
future concerns. The differences found are indicators of the
need for interventions aimed at siblings including parents so
that both are heard and thus promote communication and
interaction between them.
REFERENCES
American Psychiatric Association [APA]. (2013). Diagnostic and Statistical Manual of Mental Disorders (5ª ed.) (DSM-V). Washington. D. C.: Autor
Banda, D. R. (2015). Review of sibling interventions with children with autism. Education and Training in Autism and Developmental Disabilities, 50 (3), 303–315.
Baron-Cohen, S., (2010). Autismo y síndrome de Asperger. Madrid: Alianza editorial.
Benderix, Y., y Sivberg, B. (2007). Siblings’ experiences of having a brother or sister with autism and mental retardation: A case study of 14 siblings from five families. Journal of Pediatric Nursing, 22(5), 410–418. doi: 10.1016/j.pedn.2007.08.013
Braconnier, M., Coffman, M., Kelso, N. y Wolf, J. M. (2017). Sibling Relationships: Parent–Child Agreement and Contributions of Siblings With and Without ASD. Journal of Autism and Developmental Disorders. doi: 10.1007/s10803- 017-3393-9
Capulín, R., Díaz, K., y Román, R. (2016). El concepto de familia en México : una revisión desde la mirada antropológica y demográfica. Ciencia Ergo Sum, 23(3), 219–228. Recuperado de: http://www.redalyc.org/articulo.oa?id=10448076002
Connell, Z., Halloran, M. y Doody, O. (2014). Living with a brother who has an Autism Spectrum Disorder: a sister’s perspective. British Journal of learning disabilities. 44, 49-55. doi:10.1111/bld.12109
Dempsey, A. G., Llorens, A., Brewton, C., Mulchandani, S., y Goin-Kochel, R. P. (2012). Emotional and behavioral adjustment in typically developing siblings of children with autism spectrum disorders. Journal of Autism and
Developmental Disorders, 42(7), 1393–1402. doi: 10.1007/s10803-011- 1368-9
Di Biasi S, Trimarco B, D’Ardia C, Melogno S, Meledandri G y Levi G. (2015). Psychological Adjustment, Social Responsiveness and Parental Distress in an Italian Sample of Siblings of Children with High-Functioning Autism Spectrum Disorder. J Child Fam Stud. 2015;25(3):883–90.
Fombonne, E., Marcin, C., Manero, A. C., Bruno, R., Diaz, C., Villalobos, M., … Nealy, B. (2016). Prevalence of Autism Spectrum Disorders in Guanajuato, Mexico: The Leon survey. Journal of Autism and Developmental Disorders, 46, 1669–1685. doi: 10.1007/s10803-016-2696-6
Hastings, R. P., y Petalas, M. A. (2014). Self-reported behaviour problems and sibling relationship quality by siblings of children with autism spectrum disorder. Child: Care, Health and Development, 40(6), 833–839. doi: 10.1111/cch.12131
Hesse, T. L., Danko, C. M., y Budd, K. S. (2013). Siblings of children with autism: Predictors of adjustment. Research in Autism Spectrum Disorders, 7(11), 1323–1331. doi: 10.1016/j.rasd.2013.07.024
Joy, H., Cebula, K. y Fletcher-Watson. (2016). Influences on the psychosocial adjustment of siblings of children with autism spectrum disorder in Taiwan and the United Kingdom. Research in Autism Spectrum Disorders, 32, pp. 115-129. http://dx.doi.org/10.1016/j.rasd.2016.09.007
Lecavalier, L., Leone, S. y Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50 (3), 172-183. doi: 10.1111/j.1365- 2788.2005.00732.x
Lucio E. y Durán, C. (2010). Ficha socio-demográfica para niños (sin publicar). Manuscrito inédito
Mascha, K., y Boucher, J. (2006). Preliminary Investigation of a Qualitative Method of Examining Siblings’ Experiences of Living with a Child with ASD. The British Journal of Development Disabilities, 52(102), 19–28. doi: 10.1179/096979506799103659
Moyson, T., y Roeyers, H. (2011). The quality of life of siblings of children with autism spectrum disorder. Exceptional Children, 78(1), 41–55. doi: 10.1177/001440291107800103
Núñez, B. (2007). Familia y discapacidad de la vida cotidiana a la teoria. Argentina: Lugar editorial.
Organización Mundial de la Salud (2018). Trastornos del espectro autista. Recuperado de: https://www.who.int/es/news-room/factsheets/ detail/autism-spectrum-disorders
Organización Mundial de la Salud. (2013). Medidas integrales y coordinadas para gestionar los trastornos del espectro autista (Informe 133). Ginebra: OMS
Orozco, T. (2014). Impact of Birth Order on Autism Spectrum Disorder Children ’ S Typically-Developing Siblings. Electronic Theses, Projects and dissertations. 116. Recuperado de: http://scholarworks.lib.csusb.edu/cgi/viewcontent.cgi?article=1126ycontext= etd
Orsmond, G. I., y Seltzer, M. M. (2009). Adolescent siblings of individuals with an autism spectrum disorder: Testing a diathesis-stress model of sibling wellbeing. Journal of Autism and Developmental Disorders, 39(7), 1053–1065. doi: 10.1007/s10803-009-0722-7
Pérez, C., y Verdugo, M. (2008). La influencia de un hermano con autismo sobre la calidad de vida familiar. Revista Española de Discapacidad Intelectual Siglo Cero, 39(227), 75–90.
Petalas, M., Hastings, R., Nash, S., Hall, L., Joannidi, H., y Dowey, A. (2012). Psychological adjustment and sibling relationships in siblings of children with Autism Spectrum Disorders: Environmental stressors and the Broad Autism Phenotype. Research in Autism Spectrum Disorders, 6(1), 546–555. doi: 10.1016/j.rasd.2011.07.015
Quintero, N., y Lee, L. (2010). Sibling adjustment and maternal well-being: An examination of families with and without a child with an autism spectrum disorder. Focus on Autism and Other Developmental Disabilities, 25(1), 37– 46. doi: 10.1177/1088357609350367.Sibling
Rea-Amaya, A.C., Acle, G., Ampudia, A. y García, M. (2014). Caracterización de los conocimientos de las madres sobre la discapacidad de sus hijos y su vínculo con la dinámica familiar. Acta Colombiana de Psicología, 17(1), 91- 103. doi: 10.14718/ACP.2014.17.1.10
Rea-Amaya, A. C., Acle-Tomasini, G. y Ordaz, G. (2017). Resilience Potential of Autistic Children’s Parents and Its Relationship to Family Functioning and Acceptance of Disability. British Journal of Education, Society y Behavioural Science, 20(1): 1-16. doi: 10.9734/BJESBS/2017/32522
Smith, L., y Elder, J. (2010). Siblings and family environments of persons with autism spectrum disorder: A review of the literature. Journal of Child and Adolescent Psychiatric Nursing, 23(3), 189–195. doi: 10.1111/j.1744- 6171.2010.00240.x
Szatmari, P., Chawarska, K., Dawson, G., Georgiades, S., Landa, R., Lord, C., … Halladay, A. (2016). Prospective longitudinal studies of infant siblings of children with autism: Lessons learned and future directions. Journal of the American Academy of Child y Adolescent Psychiatry, (2016). doi: 10.1016/j.jaac.2015.12.014
Tomeny, T. S., Barry, T. D., y Bader, S. H. (2014). Birth order rank as a moderator of the relation between behavior problems among children with an autism spectrum disorder and their siblings. Autism, 18(2), 199–202. doi: 10.1177/1362361312458185
Tomeny, T. S., Ellis, B. M., Rankin J. A., y Barry, T. D. Sibling relationship quality and psychosocial outcomes among adult siblings of individuals with autism spectrum disorder and individuals with intellectual disability without autism. Research Developmental Disability. 62 (1):104-114. doi: 10.1016/j.ridd.2017.01.008.
Torres, L. y Maia, E. (2009). Percepción de las madres acerca del contenido de la información del diagnóstico de Síndrome de Down. Revista Chilena de Pediatría, 89(1), 39-47.
Tsai HWJ, Cebula K, Fletcher-Watson S. Influences on the psychosocial adjustment of siblings of children with autism spectrum disorder in Taiwan and the United Kingdom. Res Autism Spectr Disord [Internet]. 2016 [Acceso 18 de octubre de 2017];32:115–29. Available from: http://dx.doi.org/10.1016/j.rasd.2016.09.007