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2022, Número 6

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Rev Fac Med UNAM 2022; 65 (6)


Importancia del estigma en epilepsia

Gómez Martínez S, Hernández-Martínez HE, Givaudan JJ, Guerrero-García JC, Saucedo-Alvarado PE, Velasco AL

Idioma: Español
Referencias bibliográficas: 25
Paginas: 8-14
Archivo PDF: 531.36 Kb.


RESUMEN

El estigma es un fenómeno caracterizado por una respuesta negativa hacia una persona poseedora de un atributo diferente dentro del grupo social en el que se desarrolla. Se han descrito dos tipos de estigma: el percibido (sentido o interiorizado) y el promovido (social o promulgado). Dentro de las enfermedades con más carga asociada a estigma se encuentra la epilepsia, una de las enfermedades neurológicas más prevalentes a nivel mundial y de curso crónico. En los últimos años, se ha mostrado mayor interés en el estudio de este fenómeno, ya que afecta de manera directa la calidad de vida de las personas con epilepsia, influyendo en su desarrollo personal, escolar, laboral y pronóstico.


REFERENCIAS (EN ESTE ARTÍCULO)

  1. Goffman E, Guinsberg L. Estigma: la identidad deteriorada.Buenos Aires: Amorrortu; 1970.

  2. Marichal F, Quiles MN. La organización del estigma encategorías: actualización de la taxonomía de Goffman. Psicothema.2000;12(3):458-65.

  3. İnanç L, Ünal Y, Semiz ÜB, Kutlu G. Do mentalizationskills affect the perception of stigma in patients with epilepsy?Epilepsy Behav. 2018;88:49-53.

  4. Luna J, Nizard M, Becker D, Gerard D, Cruz A, RatsimbazafyV, et al. Epilepsy-associated levels of perceived stigma,their associations with treatment, and related factors: Across-sectional study in urban and rural areas in Ecuador.Epilepsy Behav. 2017;68:71-7.

  5. Henning O, Buer C, Nakken KO, Lossius MI. People withepilepsy still feel stigmatized. Acta Neurol Scand. 2021;144(3):312-6.

  6. Oderinde IT, Ogunniyi AO. The stigma of epilepsy amongNigerian subjects: A cross-sectional study. Afr J BiomedRes. 2020;23(SE1):1-7.

  7. Austin JK, Birbeck G, Parko K, Kwon C-S, Fernandes PT,Braga P, et al. Epilepsy-related stigma and attitudes: Systematicreview of screening instruments and interventions- Report by the International League Against Epilepsy TaskForce on Stigma in Epilepsy. Epilepsia. 2022;63(3):598-628.

  8. Fisher RS, van Emde Boas W, Blume W, Elger C, Genton P,Lee P, Engel J Jr. Epileptic seizures and epilepsy: definitionsproposed by the International League Against Epilepsy(ILAE) and the International Bureau for Epilepsy (IBE).Epilepsia. 2005 Apr;46(4):470-2.

  9. Espínola-Nadurille M, Crail-Melendez D, Sánchez-GuzmánMA. Stigma experience of people with epilepsy inMexico and views of health care providers. Epilepsy Behav.2014;32:162-9.

  10. World Health Organization. Epilepsy. Fact sheet. UpdatedFebruary 2022. Disponible en: http://www.who.int/newsroom/fact-sheets/detail/epilepsy

  11. Noriega-Morales G, Shkurovich-Bialik P. Situación de laepilepsia en México y América Latina. An Med (Mex).2020; 65 (3): 224-232.

  12. Lee S-A, Korean QoL in Epilepsy Study Group. Felt stigmain seizure-free persons with epilepsy: Associated factors andits impact on health-related quality of life. Epilepsy Behav.2021;122(108186):108186.

  13. Syvertsen M, Vasantharajan S, Moth T, Enger U, Koht J.Predictors of high school dropout, anxiety, and depression ingenetic generalized epilepsy. Epilepsia Open. 2020;5(4):611-5.

  14. Duffy LV, Vessey JA. A randomized controlled trial testingthe efficacy of the Creating Opportunities for Parent Empowermentprogram for parents of children with epilepsyand other chronic neurological conditions. J Neurosci Nurs.2016;48(3):166-74.9

  15. Lee S-A, Kim SJ, Korean QoL in Epilepsy Study Group.Self-efficacy in seizure management differentially correlatedwith quality of life in persons with epilepsy depending onseizure recurrence and felt stigma. Seizure. 2020;81:91-5.

  16. Xu Y, Hackett ML, Glozier N, Nikpour A, Bleasel A, SomervilleE, et al. Frequency and predictors of psychologicaldistress after a diagnosis of epilepsy: A community-basedstudy. Epilepsy Behav. 2017;75:190-5.

  17. Baker GA, Smith DF, Dewey M, Jacoby A, Chadwick DW.The initial development of a health-related quality of lifemodel as an outcome measure in epilepsy. Epilepsy Res.1993;16(1):65-81.

  18. Ryu HU, Lee S-A, Eom S, Kim H-D, Korean QoL in EpilepsyStudy Group. Perceived stigma in Korean adolescentswith epilepsy: Effects of knowledge about epilepsy andmaternal perception of stigma. Seizure. 2015;24:38-43.

  19. Llamosa García Velázquez G de L. III Congreso Latinoamericanode Epilepsia. Revista Mexicana de Neurociencia.

  20. 2004;288-92.20. Sander JW, Shorvon SD. Epidemiology of the epilepsies. JNeurol Neurosurg Psychiatry. 1996;61(5):433-43.

  21. Quintas R, Alvarez AS, Koutsogeorgou E, CerniauskaiteM, Meucci P, Sattin D, et al. The relationship betweenhealth-related quality-of-life and disability in patients withcontrolled epilepsy: a cross-sectional observational study:A cross-sectional observational study. Am J Phys Med Rehabil.2012;91(13 Suppl 1):S31-8.

  22. García-Pedroza F, Millán R, Peñaloza Y. Epidemiologíaclínica de la epilepsia. Rev Mex Neuroci. 2010;(11):82-102.

  23. Nehra A, Singla S, Bajpai S, Malviya S, Padma V, TripathiM. Inverse relationship between stigma and quality of lifein India: is epilepsy a disabling neurological condition?Epilepsy Behav. 2014;39:116-25.

  24. Yoo S-H, Kim SR, So HS, Chung H-IC, Chae DH, KimM-K, et al. The validity and reliability of the Korean versionof the Stigma Scale for Chronic Illness 8-items (SSCI-8)in patients with neurological disorders. Int J Behav Med.2017;24(2):288-93.

  25. Stangl AL, Earnshaw VA, Logie CH, van Brakel W, CSimbayi L, Barré I, et al. The Health Stigma and DiscriminationFramework: a global, crosscutting framework toinform research, intervention development, and policy onhealth-related stigmas. BMC Med. 2019;17(1):31.




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