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2017, Number 1

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Rev Cubana Pediatr 2017; 89 (1)

Family structure, pain and functional capacity in adolescents with rheumatic diseases

Martín CM, Cantera OD, Schuman BD

Language: Spanish
References: 21
Page: 30-39
PDF size: 117.20 Kb.


ABSTRACT

Introduction: child rheumatic diseases may affect the quality of life of the sick children and their relatives. There is evidence that the family functioning has a direct impact on the children´s and adolescents´health.
Objective: to analyze the relationship of the family structure, pain and disability with rheumatic diseases.
Methods: correlational, descriptive, cross-sectional and exploratory study. The sample was made up of 52 adolescents who went to the pediatric rheumatology service of "Pedro Borrás" hospital. The information was collected with the Childhood Health Assessment Questionnaire (CHAQ) and structured interviews to the adolescent and the accompanying relative.
Results: the one-factor variance analysis showed statistically significant differences between the family types for the pain intensity ranges reported by the adolescents (F= 3.892; p= .028) as well as in the functional capacity, particularly getting up (F= 4.278; p= .020) and fetching something (F= 3.447; p= .042), which were both more affected in adolescents who live in one-parent families.
Conclusions: impaired functioning and pain are mainly observed in adolescents suffering rheumatic diseases, who live in one-parent families.


REFERENCES

  1. Sacks J, Helmick C, Yao-Hua L. Prevalence of and Annual Ambulatory Health Care Visits for Pediatric Arthritis and other Rheumatologic Conditions in the U.S. in 2001- 2005. Artritis Rheumatology. 2007;57:1439-45.

  2. Serra-Valdés M. Las enfermedades reumáticas: de la teoría a la realidad. Revista Finlay [serie en Internet]. 2013 [citado 16 de Julio de 2015];3(4). Disponible en: http://www.revfinlay.sld.cu/index.php/finlay/article/view/245

  3. Coscollá A, Caro I, Calvo I, López B. Estado Psicológico del Adolescente con Enfermedad Reumática. Una primera aproximación. Psicopatología y Psicología Clínica. 2008;13(1):97-109.

  4. Coscollá A, Caro I, Calvo I, López B. Repercusión de las Enfermedades Reumáticas Infantiles. Evaluación paterna. Boletín de Psicología. 2008;92:27-50.

  5. Zhang Y, Wei M, Shen N, Zhang Y. Identifying Factors Related to Family Management During the Coping Process of Families with Childhood Chronic Conditions: A Multi-Site Study. Journal of Pediatric Nursing. 2015;30(1):160-73.

  6. Kamp CM, Schmeer KK, Taylor M. Chaos as a social determinant of child health: Reciprocal associations? Social Science & Medicine. 2013;95:69-76.

  7. Frantz J, Sixaba Z, Smith M. A Systematic Review of the Relationship between Family Structure and Health Risk Behaviours amongst Young People: An African Perspective. The Open Family Studies Journal. 2015;7:3-11.

  8. OMS. La familia y la salud. 37ma. sesión del subcomité de planificación y programación del comité ejecutivo. Washington, D.C., EUA; 26 al 28 de marzo de 2003.

  9. Louro Bernal I. Modelo teórico-metodológico para la evaluación de salud del grupo familiar en la atención primaria [tesis en opción al grado de Doctora en Ciencias de la Salud]. Escuela Nacional de Salud Pública. La Habana; 2004.

  10. Singh G, Athreya B, Friesjf Goldsmith D. Measurement of health status in children with juvenile rheumatoid arthritis. Arth Rheum. 1994;37:1761-9.

  11. Ruperto N, Ravelli A, Pistorio A, Malattia C, Cavuto S, Gado-West L, et al. Crosscultural adaptation and psychometric evaluation of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ) in 32 countries. Review of the general methodology. Clin Exp Rheumatol. 2001;19(suppl 23): S1-9.

  12. Coto C, Varela G, Estrada G, Hernández V, Cantera D, Damil R, Méndez M. Validación de la versión cubana en español, del cuestionario de evaluación de la salud (Childhood Health Assessment Questionnaire) en niños cubanos con Artritis Reumatoidea Juvenil. Revista Cubana de Reumatología. 1999;1(1):41-53.

  13. Código de ética profesional de los psicólogos cubanos. Sociedad de Psicólogos de Cuba: La Habana, Cuba; 1986.

  14. Asociación Médica Mundial. Declaración de Helsinki [homepage en Internet]; Helsinki, 1964 [citado 19 de Enero de 2015]. Disponible en: http://www.wma.net/es/30publications/10policies/b3/17c_es.pdf

  15. Franco MC, Alfonso ME. El perfil sociodemográfico de los hogares cubanos. Cuadernos de población y Desarrollo. La Habana: Oficina Nacional de Estadísticas; 2008. p. 203-5.

  16. Schmeer K. Family structure and obesity in early childhood. Soc Sci Res. 2012;41(4):820-32.

  17. Schmeer K. Family structure and child anemia in Mexico. Soc Sci and Med. 2012;(16):23.

  18. Bugni VM, Osaki LS, Okamoto KY, Barbosa CM, Hilário MO, Len CA, et al. Factors associated with adherence to treatment in children and adolescents with chronic rheumatic diseases. J Pediatr. 2012;88(6):483-8.

  19. Rouquette A, Badley EM, Falissard B, Dub T, Leplege A, Coste J. Moderators, mediators, and bidirectional relationships in the International Classification of Functioning, Disability and Health (ICF) framework: An empirical investigation using a longitudinal design and Structural Equation Modeling (SEM). Social Science & Medicine [serie en Internet]. 2015 [citado 19 de Enero de 2015];135. Disponible en: http://www.sciencedirect.com/science/article/pii/S0277953615002804%29

  20. Moralán S. Dolor en el niño y adolescente con Enfermedades Reumáticas. Reumatología Pediátrica. 2013;5(3):6-8.

  21. Cantera DT. Inflamación y dolor músculo esquelético en edades pediátricas. Cap. 3. Artroscopia diagnóstica de rodilla. Colección Pediatría. La Habana: Editorial Ciencias Médicas; 2011. p. 17-43.




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