2016, Number 2
Next >>
Revista Cubana de Informática Médica 2016; 8 (2)
Improvement genetics services to pregnant women and newborn by health informatic network SALGEN
Rodríguez VM, Pérez RR, Santiago PDG
Language: Spanish
References: 19
Page: 158-165
PDF size: 189.06 Kb.
ABSTRACT
The Sancti Spíritus Provincial Medical Genetics Network has been using the Salgen informatics platform since 2009 for health care, administrative and research activities oconcerning pregnant mothers and newborns. The network uses the national Infomed backbone to provide real-time connection between community-based polyclinics in primary health care and the Provincial Medical Genetics Reference Center. Until September 2015 the platform has recorded 34 452 pregnant women and sequential clinical data on genetic risk assessment in early pregnancy, prenatal ultrasound, sickle cell anemia screening, alpha-fetoprotein levels, cytogenetic antenatal diagnosis, delivery and newborn characteristics, neonatal metabolic screening, and infant clinical assessment. The system makes health care results immediately available and provides 160 health alerts to enable timely preventive care for pregnant women. It also provides guidelines for processes and practices, and streamlines administrative and monitoring activities through statistical reports. The database generates indicators for assessing fetal growth and applies international standards for antenatal ultrasound quality control. Salgen can be use in any institution of primary health services, municipality or provinces of Cuba.
REFERENCES
Colectivo de Autores: Por la Vida. Estudio Psicosocial de las personas discapacitadas y estudio psicopedagógico y clínico genético de las personas con retraso mental en Cuba. La Habana: Casa Editora Abril, 2003.
Marcheco B. Cuba's National Medical Genetics Programs. MEDICC Review 2009;11(1):11-13.
Aragonés C, Campos J, Pérez D, Martínez A, Pérez J. SIDATRAT: InformaticstoImprove HIV/AIDS Care. MEDICC Review.2012;14(4): 5-8.
Delgado A, Gorry C. Cuba's National Health Strategy. MEDICC Review, 2008;10(1): 6-8.
Cuba, Ministerio de Salud Pública. Manual de Organización del Policlínico. Ciudad de la Habana: Minsap; 2010.
Anuario Nacional de Estadísticas 2011. Habana: Ministerio de Salud Pública; 2012. p. 19.
Sahota DS, Leung TY, Leung TN, Chan OK, Lau TK. Fetal crown rump length and estimation of gestational age in an ethnic Chinese population. Ultrasound Obstet Gynecol 2009;33:157-160.
Verburg B, Steegers E, De Ridder M, Sniijders R, Smith E, Hofman A, et. al. New charts for ultrasound dating of pregnancy and assessment of fetal growth: longitudinal data from a population-based cohort study. Ultrasound Obstet Gynecol. 2008;31:388-396.
Fetal size and dating: Charts recommended for clinical obstetric practice. British Medical Ultrasound Society. [citado 7 Abr 2008] Disponible en: http://www.bmus.org/policies-guides/23-17-3-161_ultBMUS.pdf
Cuckle H. Monitoring Quality Control of Nuchal Translucency. Clin Lab Med. 2010;30: 593-604.
Biau DJ, Porcher R, Salomon LJ. CUSUM: a tool for ongoing assessment of performance. Ultrasound Obstet Gynecol.2008;31:252-255.
Sabria J, Barcelo C, Arigita M, Jiménez M, Puerto B, Borrell A. The CUSUM test applied in prospective nuchal translucency quality review. Ultrasound Obstet Gynecol.2011;37:582-587.
Balsyte D, Schäffer L, Burkhardt T, Wisser J, Krafft A, Kurmanavicius J. Continuous Independent Quality Control for Fetal Nuchal Translucency Measurements Provided by the Cumulative Summation Technique. Ultraschall in Med. 2011; 32: E141-E146.
Sahota DS, Leung WCh, To WK, Chan WP, Lau TK, et al. Quality assurance of nuchal translucency for prenatal fetal Down syndrome screening. J Maternal-Fetal Neonatal Med. 2012;25(7):1039-1043.
Evans MI, Krantz DA, Hallahan TW, Sherwin JE. Undermeasurement of Nuchal Translucencies: Implications for Screening. Obs Gyn. 2010;4:815-818.
D' Alton ME. Nuchal Translucency Quality Monitoring. The transition from research to clinical care. Obs Gyn. 2010;4:806-807.
D'Alton ME, Cleary J. Education and Quality Review for Nuchal Translucency. Ultrasound SeminPerinatol 2005;29:380-385.
López P, Morales I, Lara S, Martínez N, Lau S, Soler S. Las Redes Integradas de Servicios de Salud desde la realidad cubana. Rev Cubana SaludPública. 2009;35(4):34-43.
Ekelund CK, Skovbo P, Holmskov A, Farlie R, Stornes I, Petersen OB, et. al. Development and establishment of a national Danish fetal medicine database for quality surveillance and research. Ultras Obstet Gynecol. 2009;34(S1):218.