2014, Number 3-4
<< Back Next >>
MEDICC Review 2014; 16 (3-4)
Cuba’s salgen: A provincial informatics network for genetic services to pregnant women and newborns
Rodríguez-Vázquez M, Pérez RR, Valero RD, Santiago PDG
Language: English
References: 24
Page: 61-64
PDF size: 148.39 Kb.
ABSTRACT
The Sancti Spíritus Provincial Medical Genetics Network has been using the Salgen IT platform since 2009 for health care, administrative and research activities concerning pregnant mothers and newborns. The network uses the national Infomed backbone to provide real-time connection between community-based polyclinics in primary health care and the Provincial Medical Genetics Reference Center. The platform has records for 23,025 pregnant women and sequential clinical data on genetic risk assessment in early pregnancy, first trimester ultrasound, sickle cell anemia screening, alpha-fetoprotein levels, cytogenetic antenatal diagnosis, second trimester ultrasound, delivery and newborn characteristics, neonatal metabolic screening, and infant clinical assessment. The system makes health care results immediately available and provides health alerts to enable timely preventive care for pregnant women. It also provides guidelines for processes and practices, and streamlines administrative and monitoring activities through statistical reports. The database generates indicators for assessing fetal growth and applies international standards for antenatal ultrasound quality control. Salgen provides a new source of information for medical research and knowledge management, and its use in this case fulfills Cuba's criteria for an integrated health services network.
REFERENCES
Colectivo de autores. Programa para el diagnóstico y prevención de malformaciones congénitas y enfermedades hereditarias. Havana: Medical Sciences University of Havana (CU); 1986. p. 3–7. Spanish.
Colectivo de Autores. Por la Vida. Estudio psicosocial de las personas discapacitadas y estudio psicopedagógico y clínico genético de las personas con retraso mental en Cuba. Havana: Casa Editorial Abril, Cuba; 2003. p. 19–25. Spanish.
Marcheco Teruel, B. Cuba's National Medical Genetics Program. MEDICC Rev. 2009 Jan;11(1):11–3.
Nicolaides KH, Falcon O. La ecografía de las 11–13+6 semanas. London: Fetal Medicine Foundation (UK) [Internet]. 2004 [cited 2008 May 12]. 119 p. Available from: http://www.fetalmedicine.com/synced/fmf/FMF-spanish.pdf. Spanish.
Bindra R, Heath V, Liao A, Spencer K, Nicolaides KH. One-stop clinic for assessment of risk for trisomy 21 at 11–14 weeks: a prospective study of 15 030 pregnancies. Ultrasound Obstet Gynecol. 2002 Sep;20(3):219–25.
Malone FD, Canick JA, Ball RH, Nyberg DA, Comstock CH, Bukowski R, et al. First-Trimester or Second-Trimester Screening, or Both, for Down's Syndrome. N Engl J Med. 2005 Nov 10;353(19):2001–11.
Aragonés C, Campos JR, Pérez D, Martínez A, Pérez J. SIDATRAT: Informatics to Improve HIV/AIDS Care. MEDICC Rev. 2012 Oct;14;(4):5–8.
Delgado A, Gorry C. Cuba's National Health Strategy. MEDICC Rev. 2008 Jan;10(1):6–8.
Ministry of Public Health (CU). Manual de Organización del Policlínico. Havana: Ministry of Public Health (CU); 2010. Spanish.
National Health Statistics and Medical Records Division (CU). Anuario Estadístico de Salud 2011. Havana: Ministry of Public Health (CU); 2012. p. 19. Spanish.
Sahota DS, Leung TY, Leung TN, Chan OK, Lau TK. Fetal crown rump length and estimation of gestational age in an ethnic Chinese population. Ultrasound Obstet Gynecol. 2009 Feb;33(2):157–60.
Verburg BO, Steegers EA, De Ridder M, Sniijders RJ, Smith E, Hofman A, et al. New charts for ultrasound dating of pregnancy and assessment of fetal growth: longitudinal data from a population-based cohort study. Ultrasound Obstet Gynecol. 2008 Apr;31(4):388–96.
Loughna P, Chitty L, Evans T, Chudleigh T. Fetal size and dating: Charts recommended for clinical obstetric practice. Ultrasound [Internet]. 2009 Aug [cited 2008 Apr 7];17(3):161–7. Available from: http://www.bmus.org/policies-guides/23-17-3-161_ultBMUS.pdf
Cuckle H. Monitoring quality control of nuchal translucency. Clin Lab Med. 2010 Sep;30(3):593–604.
Biau DJ, Porcher R, Salomon LJ. CUSUM: a tool for ongoing assessment of performance. Ultrasound Obstet Gynecol. 2008 Mar;31(3):252–5.
Sabrià J, Barceló-Vidal C, Arigita M, Jiménez JM, Puerto B, Borrell A. The CUSUM test applied in prospective nuchal translucency quality review. Ultrasound Obstet Gynecol. 2011;37(5):582–7.
Balsyte D, Schäffer L, Burkhardt T, Wisser J, Krafft A, Kurmanavicius J. Continuous independent quality control for fetal nuchal translucency measurements provided by the cumulative summation technique. Ultraschall Med. 2011 Dec;32 Suppl 2: E141–6.
Sahota DS, Leung WC, To WK, Chan WP, Lau TK, Leung Ty. Quality assurance of nuchal translucency for prenatal fetal Down syndrome screening. J MaternFetal Neonatal Med. 2012 Jul;25(7):1039–43.
Balsyte D, Schäffer L, Burkhardt T, Wisser J, Zimmermann R, Kurmanavicius J. Continuous independent quality control for fetal ultrasound biometry provided by the cumulative summation technique. Ultrasound Obstet Gynecol. 2010 Apr;35(4):449–55.
Evans MI, Krantz DA, Hallahan TW, Sherwin JE. Undermeasurement of nuchal translucencies: implications for screening. Obstet Gynecol. 2010 Oct;116(4):815–8.
D'Alton ME. Nuchal translucency quality monitoring. The transition from research to clinical care. Obstet Gynecol. 2010 Oct;116(4):806–7.
D'Alton ME, Cleary-Goldman J. Education and quality review for nuchal translucency ultrasound. Semin Perinatol. 2005 Dec;29(6):380–5.
López P, Morales I, Lara S, Martínez N, Lau S, Soler S. Las Redes Integradas de Servicios de Salud desde la realidad cubana. Rev Cubana Salud Pública. 2009;35(4):34–43. Spanish.
Ekelund CK, Skovbo P, Holmskov A, Farlie R, Stornes I, Petersen OB, et al. Development and establishment of a national Danish fetal medicine database for quality surveillance and research. Ultras Obstet Gynecol. 2009;34(S1):218.