2013, Number 3
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Acta Pediatr Mex 2013; 34 (3)
Collaborating to improve quality of life in patients with primary immunodeficiencies: World Primary Immunodeficiency Week (WPIW) 2013
Sorensen R, Etzioni A, Aziz A, Zeiger JB
Language: Spanish
References: 16
Page: 166-170
PDF size: 162.55 Kb.
ABSTRACT
World Primary Immunodeficiency Week (WPIW) 2013, is celebrated
annually on 22-29 April. This year WPIW focuses on the need to
test, diagnose and treat this primary immunodeficiency to promote
its early detection and appropriate care. This year’s reflexions
focuses on various regions of the world. The authors have taken
stock of the situation in their respective areas of the world: Europe,
Latin America, North Africa and Middle East, as well as Australia.
Through a cross country analysis, it reflects on progress made to
date to improve the life of patients with primary immunodeficiency
diseases (PIDs) and the challenges that remain to address. In
addition the authors address the need for continued international
collaboration amongst all relevant actors to drive better access to
early diagnosis and appropriate treatment and ultimately improve
the life of patients with PIDs.
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