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ISSN 1561-3119 (Electronic)

2012, Number 3

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Rev Cubana Pediatr 2012; 84 (3)

Technology-dependent children, an emerging health problem

Robaina CGR, Riesgo RSC

Language: Spanish
References: 25
Page: 282-292
PDF size: 84.13 Kb.


ABSTRACT

Since several decades ago, a growing number of children require technologies to continue living. These technology-dependent children should often have nursing care at home. The objective of this paper was to make a literature review on this topic. Some definitions, classifications and principles for home care for technology-dependent children, as well as the skills and competencies that the nursing staff should develop were explained. Although these children are a minority group of patients in Cuba, it is necessary to integrate their care into a single program. The centered care at the family environment, the adequate coordination between the different health levels, the care continuity and the accessibility of the whole population to this care are some of the main basic principles for the implementation of a care program, but it also requires the support of all the members of the society.


REFERENCES

  1. OMS. Informe sobre la situación mundial de las enfermedades no transmisibles. 2010. Resumen de orientación [homepage en Internet]. WHO/NMH/CHP/11.1; 2011 [citado 6 de febrero de 2012]. Disponible en: http://www.who.int/entity/nmh/publications/ncd_report_summary_es.pdf

  2. The global burden of preterm birth (editorial). Lancet. 2009 Oct;374(9697):1214.

  3. Mwaniki MK, Atieno M, Lawn JE, Newton CH. Long-term neurodevelopmental outcomes after intrauterine and neonatal insults: a systematic review. Lancet. 2012 Feb;379(9814):445-52.

  4. Doyle LW, Anderson PJ. Long-term outcomes of bronchopulmonary dysplasia. Semin Fetal Neonatal Med. 2009 Dec;14(6):391-5.

  5. Kirk S, Glendinning C. Supporting 'expert' parentsprofessional support and families caring for a child with complex health care needs in the community. Int J Nurs Stud. 2002;39:625-35.

  6. American Academy of Pediatrics. Council on Children with Disabilities. Care coordination in the medical home: integrating health and related systems of care for children with special health care needs. Pediatrics. 2005 Nov;116(5):1238-44.

  7. Floriani CA. Home-based palliative care: challenges in the care of technology-dependent children. J Pediatr (Rio J). 2010 Jan-Feb;86(1):15-20.

  8. Glendinning C, Kirk S, Guiffrida A, Lawton D. Technology-dependent children in the community: definitions, numbers and costs. Child Care Health Dev. 2001 Jul;27(4):321-34.

  9. Dybwik K, Tollåli T, Waage Nielsen E, Støre Brinchmann B. Why does the provision of home mechanical ventilation vary so widely? Chron Respir Dis. 2010;7(2):67-73.

  10. Office of Technology Assessment. Technology-Dependent Children: Hospital vs. Home Care-A Technical Memorandum, OTA-TM-H-38 [homepage en internet]. Washington, DC: US Government Printing Office; 1987 [citado 11 de febrero de 2012]. Disponible en: http://www.fas.org/ota/reports/8728.pdf

  11. McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, et al. A new definition of children with special health care needs. Pediatrics. 1998;102:137-40.

  12. Newacheck PW, Rising JP, Kim SE. Children at risk for special health care needs. Pediatrics. 2006 Jul;118(1):334-42.

  13. Klick JC, Hauer J. Pediatric Palliative Care. Curr Probl Pediatr Adolesc Health Care. 2010;40(6):120-51.

  14. American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics. 2000;106(2 Pt 1):351-7.

  15. Grupo de Seguimiento de Recién Nacidos de Alto Riesgo SeguiSIBEN. Sociedad Iberoamericana de Neonatología. Guía para el Seguimiento de los Tres Primeros Años de RN Prematuros de Muy Bajo Peso al Nacer [homepage en Internet]. [citado 11 de agosto de 2011]. Disponible en: http://www.siben.net/archivos/seguisiben/guiasegesp.pdf

  16. Gordon JB, Colby HH, Bartelt T, Jablonski D, Krauthoefer ML, Havens P. A tertiary careprimary care partnership model for medically complex and fragile children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007 Oct;161(10):937-44.

  17. Kingston RL. Home Care of the Ventilator Dependent Child. Home Health Care Manag Pract. 2007 Oct;19(6):436-41.

  18. Domínguez-Alonso E, Zacca E. Sistema de salud de Cuba. Salud Pública Mex. 2011;53(supl 2):S168-S176.

  19. Álvarez Sintes R. Medicina general integral en Cuba. Cap 8. En: Álvarez Sintes R, editor. Medicina General Integral. 2da. ed. Vol I. Salud y Medicina. La Habana: Editorial Ciencias Médicas; 2008. p. 68-74.

  20. Robaina Castellanos GR, Riesgo Rodríguez SC. Propuesta de programa de seguimiento de recién nacidos de alto riesgo en Cuba. Rev Méd Electrón [serie en Internet]. 2011 Sep-Oct [citado 7 de febrero de 2012];33(5). Disponible en: http://www.revmatanzas.sld.cu/revista%20medica/ano%202011/vol5%202011/tema12.htm

  21. Escarrabill J. El futuro de la ventilación mecánica domiciliaria: redes o contenedores (editorial). Arch Bronconeumol. 2007;43(10):527-9.

  22. Dirección Nacional del Programa Materno Infantil. Protocolo de Atención a pacientes pediátricos con ventilación mecánica pulmonar prolongada. La Habana: MINSAP.

  23. King G, King S, Rosenbaum P, Goffing R. Family centred caregiving and well-being of parents of children with disabilities: linking process with outcome. J Pediatr Psychol. 1999;24(1):41-53.

  24. Berdayes Martínez D. Teorías y modelos en la Atención Primaria de Salud. Cap 7. En: Colectivo de autores. Enfermería familiar y social. La Habana: Editorial Ciencias Médicas; 2004. p. 105-60.

  25. Hewitt-Taylor J. Children who require long-term ventilation: staff education and training. Intensive Crit Care Nurs. 2004;20(2):93-102.




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