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2022, Number 4

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Dermatología Cosmética, Médica y Quirúrgica 2022; 20 (4)

The impact of therapeutic patient education through play-based workshops on the quality of life of patients with atopic dermatitis

Morales-Olvera D, Morán-Villaseñor E, Campos-Cabrera BL, Piña-Ramírez MJ, Enríquez-Grimaldo MG, Durán-McKinster C, Saez-de Ocariz M, Palacios-López C, García-Romero MT

Language: English
References: 30
Page: 389-396
PDF size: 270.03 Kb.


ABSTRACT

Introduction: atopic dermatitis (AD) affects patients’ quality of life (QOL) similarly to other chronic diseases. Therapeutic patient education (TPE) allows patients to acquire knowledge about their disease and take responsibility for their own care, improving severity and QOL. We aimed to evaluate how attending play-based therapeutic educational workshops improved a group of patients’ qol and AD severity.
Methods: a prospective longitudinal study including patients 2-18 years old with AD who consented to participate was performed. Before the first workshop, a questionnaire about treatment and skin-care practices was applied, and the Severity Scoring of AD (SCORAD) index was measured. Patients’ qol was evaluated using Pediatric qol Inventory™ (Pedsql™), applied to patients and their parents. Questionnaires were applied again after attending one and three TPE workshops. Statistical analysis was performed using Wilcoxon Rank sum test.
Results: We included 32 children, 51.6% were girls, with a median age of 7.5 years. Initial median SCORAD was 36.05, this decreased to 18.6 after the 1st workshop (p = 0.05) and 23 after the 3rd workshop. Parent-reported Pedsql™ total score significantly improved across time points (62.5, 72.8 and 70.6) in all domains, including physical, emotional and social domains with the exception of school functioning. Child-reported Pedsql ™ total score improvement was more evident after the 1st workshop, but individual emotional and social scores improved significantly only after the 3rd workshop.
Conclusions: tpe effectively decreased disease severity and improved qol in ad patients, especially emotional and social aspects. Attending ›1 workshop may improve qol more than ad severity.


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