2015, Número 6
<< Anterior Siguiente >>
Rev Med Inst Mex Seguro Soc 2015; 53 (6)
Terminología en bioética clínica
Herreros B, Moreno-Milán B, Pacho-Jiménez E, Real AD, Roa-Castellanos RA, Valenti E
Idioma: Español
Referencias bibliográficas: 68
Paginas: 750-761
Archivo PDF: 332.66 Kb.
RESUMEN
En el artículo se definen algunos de los términos más
relevantes en bioética clínica. Los términos se han
escogido con base en tres criterios: repercusión en los
problemas más importantes en bioética clínica, dificultad
en su comprensión y necesidad de aclarar su significado.
Para su mejor comprensión, los términos se han
agrupado en 5 áreas temáticas: conceptos generales
(conflicto de valores, deliberación, conflicto de intereses,
objeción de conciencia); justicia (justicia, justicia
distributiva, modelos de justicia, triage); relación clínica
(información, competencia, capacidad, consentimiento
informado, menor maduro, coacción, intimidad, privacidad,
confidencialidad, secreto profesional); final de la
vida (instrucciones previas, limitación de los esfuerzos
terapéuticos, obstinación profesional, futilidad, cuidados
paliativos, sedación paliativa, principio del doble
efecto, eutanasia, suicidio asistido, estado vegetativo
persistente, estado de mínima conciencia, síndrome
de enclaustramiento, muerte encefálica), e inicio de
la vida (reproducción asistida, consejo genético, diagnóstico
genético preimplantacional).
REFERENCIAS (EN ESTE ARTÍCULO)
Petrova M, Dale J. Fulford BK. Values-based practice in primary care: easing the tensions between individual values, ethical principles and best evidence. British Journal of General Practice, 2006: 56(530), 703-709.
Roa-Castellanos, RA, Bauer C. Presentación de la palabra bioética, del imperativo bioético y de la noción de biopsicología por Fritz Jahr en 1929. Revista Bioethikos, 2009: 3,158-170.
Gracia D. Moral deliberation: the role of methodologies in clinical ethics. Med Healthc Philos 2001;4(2): 223-232.
Gracia D. Deliberation and Consensus. En: Chadwick R, Have HT, Meslin EM, eds. The SAGE Handbook of Health Care Ethics. London, UK: SAGE Publications 2011:84-94.
Moreno JD. Ethics by committee: the moral authority of consensus. J Med Philos. 1988 Nov;13(4):411-32.
Pellegrino ED. Ethics. JAMA. 1987 Oct 23-30;258 (16):2298-300.
Moreno JD. Deciding Together: Bioethics and Moral Consensus. New York/Oxford: Oxford University Press, 1995:53-64.
Foster RS. Conflicts of interest: recognition, disclosure and management. J Am Coll Surg. 2003;196: 505-17.
Grande D, Frosch DL, Perkins AW, Kahn BE. Effect of exposure to small pharmaceutical promotional items on treatment preferences. Arch Intern Med. 2009;169:887-93.
Van McCrary S, Anderson CB, Jakovljevic J, Khan T, McCullough LB, Wray NP, et al. A national survey of policies on disclosure of conflicts of interest in biomedical research. New Engl J Med. 2000;343: 1621-6.
Kolers A. Am I my profession’s keeper? Bioethics. 2014;28:1-7.
Sartea C. ¿Qué objeción? ¿Qué conciencia? Reflexiones acerca de la objeción de conciencia y su fundamentación conceptual. Cuad Bioet. 2013;26: 391-7.
Savulescu J. Concientious objection in medicine. BMJ. 2006;332:294-7.
Mitnick S, Leffer C, Hood VL. American College of Physicians Ethics, Professionalism and Human Right Committee. Family caregivers, patients and physicians: ethical guidance to optimize the relationship. J Gen Intern Med, 2010; 25:255-60.
Synder L. American College of Physicians Ethics Manual Sixth Edition. Annals of Internal Medicine 2012; 156(1):74-104.
Aristotle. Nichomachean Ethics. Ed. Roger Crispe. Cambridge 2000. II30b.
Sterba JP. Justice 1995. En: Encyclopedia of bioethics, 3ª Edicion. Gerrard S. Thomson-Gale 2004. Vol 3, 1354-1360.
Cameron PA, Gabbe BJ, Smith K, Miltra B. Triaging the right patient to the right place in the shortest time. Br J Anaesth. 2014;113:226-33.
Whitaker P. Resource allocation: a plea for a touch of realism. J Med Ethics. 1990;16:129-31.
Lautrette, Alexandre et al. A Communication Strategy and Brochure for Relatives of Patients Dying in the ICU. N Engl J Med 2007; 356:469-478.
Levin, Tommer et al. End-of-life communication in the intensive care unit. Gen Hosp Psychiatry. 2010 Jul-Aug; 32(4):433-42.
Weinberger, SE et al. Competency-Based Education and Training in Internal Medicine. Annals of Internal Medicine (2010)153, 751-756.
P Simón Lorda. La capacidad de los pacientes para tomar decisiones. Med Clin (Barc) 2001; 117: 419-426.
P Simón Lorda. El consentimiento informado: teoría y práctica. Med Clin (Barc) 1993; 101 (5), 174-182.
Faden R, Beauchamp, TL. A History and Theory of Informed Consent. Oxford University Press. New York, 1986, 238.
Gracia D, Jarabo Y, Martín Espíldora N, Ríos J. Toma de decisiones en el paciente menor de edad. Med Clin (Barc) 2001; 117: 179-190.
Borry P, Fryns JP, Schotsmans P, Dierickx K. Carrier testing in minors: a systematic review of guidelines and position papers. European Journal of Human Genetics (2006) 14, 133-138.
Wertheimer A. A philosophical examination of coercion for mental health issues. Behavioral Sciences and the Law 1993; 11: 239-258.
Bonnie RJ, Monahan J. From coercion to contract: reframing the debate on mandated community. Treatment for people with mental disorder. Law and Human Behavior 2005; 29 (4): 485-503.
Szmulker G, Appelbaum P. Treatment pressures, leverage, coercion and compulsion in mental health care. Journal of Mental Health 2008; 17:233-244.
Appelbaum PS, Le Melle S. Techniques used by assertive community treatment (ACT) teams to encourage adherence: patient and staff perceptions. Community Mental Health Journal 2008; 44:459–464.
Molodynsky A, Rugkasa J, Burns T. Coercion and compulsion in community mental health care. British Medical Bulletin 2010; 1-15.
Gledhill K. Community treatment orders. Journal of Mental Health Law 2007; 16:149-69.
Munetz M, Patricia A, MSN, Frederick J. The ethics of mandatory community treatment. Journal of American Academy Psychiatry and Law 2003; 31:173-83.
Iraburu M. Con voz propia: decisiones que podemos tomar ante la enfermedad. Alianza editorial, Madrid, 2005, 88.
Moskop JC, Marco CA, Larkin GL, Geiderman JM, Dense AR. From Hippocrates to HIPAA: Privacy and confidentiality in emergency medicine - Part I: Conceptual, moral and legal foundations. Ann Emerg Med. 2005;45:53-9.
Thompson IE. The nature of confidentiality. J Med Ethics. 1979;5:57-64.
Consejo General de Colegios Oficiales de Médicos. [Publicación en línea] «Código de Deon- tología Médica. Guía de ética médica». 2011. . [consultado 15 diciembre 2014].
Goffin T. Advance directives as an instrument in an ageing Europe. Eur J Health Law. 2012 Apr; 19 (2): 121-40.
White DB, Arnold RM. The evolution of advance directives. JAMA. 2011 Oct 5;306(13):1485-6.
Shaw D. A direct advance on advance directives. Bioethics. 2012 Jun;26(5):267-74.
Cochrane TI. Withdrawing and withholding lifesustaining treatment. Handb Clin Neurol. 2013;118: 147-53.
Manalo MF. End-of-Life Decisions about Withholding or Withdrawing Therapy: Medical, Ethical, and Religio-Cultural Considerations. Palliat Care. 2013 Mar 10;7:1-5.
Wilkinson D, Savulescu JA. costly separation between withdrawing and withholding treatment in intensive care. Bioethics. 2014 Mar;28(3):127-37.
Clark JD, Dudzinski DM. The culture of dysthanasia: attempting CPR in terminally ill children. Pediatrics. 2013 Mar;131(3):572-80.
Herreros B, Palacios G, Pacho E. Limitation of the therapeutic effort. Rev Clin Esp. 2012 Mar;212(3):134-40.
Krysinska KE, Lester D. Dysthanasia versus euthanasia. Psychol Rep. 2009 Dec;105(3 Pt 1):701-2.
Curtis JR, Vincent JL. Ethics and end-of-life care for adults in the intensive care unit. Lancet 2010; 376:1347.
Huynh TN, Kleerup EC, Wiley JF, Savitsky TD, Guse D, Garber BJ, et al. The frequency and cost of treatment perceived to be futile in critical care. JAMA Intern Med 2013;173:1887.
World Health Organization (WHO) definition of palliative care, available online at http://www.who.int/ cancer/palliative/definition/2015.
Partridge AH, Seah DS, King T, Leighl NB, Hauke R, Wollins DS, et al. Developing a service model that integrates palliative care throughout cancer care: the time is now. J Clin Oncol 2014; 32:3330.
Maltoni M, Scarpi E, Rosati M, Derni S, Fabbri L, Martini F, et al. Palliative sedation in end-of-life care and survival: a systematic review. J Clin Oncol 2012;30:1378-83.
Mercadante S, Porzio G, Valle A, Aielli F, Casuccio A, Home Care-Italy Group. Palliative sedation in patients with advanced cancer followed at home: a prospective study. J Pain Symptom Manage 2014; 47:860.
Quill TE. Death and dignity. A case of individualized decision making. N Engl J Med 1991; 324:691.
Orentlicher D, Pope TM, Rich BA. The changing legal climate for physician aid in dying. JAMA. 2014; 311:1961-2.
Weijer C, Peterson A, Webster F, Graham M, Cruse D, Fernández-Espejo D, et al. Ethics of neuroimaging after serious brain injury. BMC Med Ethics. 2014 May 20;15:41.
Gipson J, Kahane G, Savulescu J. Attitudes of Lay People to Withdrawal of Treatment in Brain Damaged Patients. Neuroethics (2014) 7:1-9.
Burkle CM, Sharp RR, Wijdicks EF. Why brain death is considered death and why there should be no confusion. Neurology. 2014 Oct 14;83(16):1464-9.
Chassé M, Glen P, Doyle MA, McIntyre L, English SW, Knoll G, et al. Ancillary testing for diagnosis of brain death: a protocol for a systematic review and meta-analysis. Syst Rev. 2013 Nov 9;2:100.
Youn TS, Greer DM. Brain death and management of a potential organ donor in the intensive care unit. Crit Care Clin. 2014 Oct;30(4):813-31.
Trounson A, Mohr L. Human pregnancy following cryopreservation, thawing and transfer of an eightcell embryo. Nature1983, 305 (5936), 707-709.
Guttmacher AF. The role of artifical insemination in the treatment of sterility. Obstetrical & gynecological survey 1960, 15(6), 767-788.
Rubin B. Psychological aspects of human artificial insemination. Archives of general psychiatry, 1965, 13(2), 121-132.
Howlader N, Noone AM, Krapcho M, Garshell J, Neyman N, Altekruse SF, et al (eds.). SEER Cancer Statistics Review, 1975-2010. Bethesda, MD: National Cancer Institute. Retrieved June 24, 2013.
Cabrera E, Blanco I, Yagüe, C, Zabalegui A. The impact of genetic counseling on knowledge and emotional responses in Spanish population with family history of breast cancer. Patient education and counseling, 2010, 78(3), 382-388.
Clarke A. Is non-directive genetic counselling possible? The Lancet, 1991, 338(8773), 998-1001.
Sermon, K, Van Steirteghem A, Liebaers I. Preimplantation genetic diagnosis. The Lancet, 2004, 363(9421), 1633-1641.
Geraedts JPM, De Wert GMWR. Preimplantation genetic diagnosis. Clinical genetics, 2009, 76(4), 315-325.